Palliative care is important for the patients suffering from life threatning diseaes. It focuses on the patient as a whole, addressing their physical, psychological, social, and spiritual needs. Rajiv Gandhi Cancer Institute and Research Centre (RGCIRC) hosted the second Annual Palliative & Hospice Care Educational Symposium (PACES 2024) at Gulmohar Club, Delhi, bringing together cancer survivors, patients, and healthcare experts to highlight the crucial role of palliative care in cancer treatment. The event focused on fostering compassionate communities to improve the quality of life for cancer patients and their families through innovative approaches and meaningful dialogue.
PACES 2024, held in celebration of the upcoming World Hospice and Palliative Care Day on October 12, carried the theme, “10 Years Since the Resolution: How Are We Doing?” The symposium highlighted the global commitment to integrating palliative care into healthcare systems and enhancing the well-being of both patients and caregivers.
One of the key moments of the event was the release of the “FAQs in Palliative Care” booklet, a comprehensive resource developed from insights gathered over seven years from patients, families, and caregivers. Additionally, RGCIRC announced the formation of new palliative care support groups aimed at enhancing community engagement. These groups are designed to provide relief from cancer-related pain and distress, prioritising quality of life and recognising death as a natural part of life.
Dr Gauri Kapoor, Medical Director at RGCIRC Niti Bagh and Director of Pediatric Hematology & Oncology, shared the institute’s vision: “Our mission is to reduce suffering and enhance the quality of life for our patients. Through initiatives like the FAQ booklet and the Palliative Care Support Group, we are committed to building a compassionate community that supports every patient on their journey.”
The newly formed support groups will address the physical, mental, and emotional needs of patients and caregivers, fostering connections between families and offering essential bereavement support. According to Dr. Sunny Malik, Consultant in Charge of the Department of Pain Management, Hospice Care & Palliative Medicine at RGCIRC and Organising Secretary of PACES, establishing such groups presents unique challenges. "Patients often pass away, and their loved ones may avoid gatherings due to painful memories. However, we believe forming this support group is essential," he said.
The Palliative Care Support Group will initially focus on supporting 10 to 15 families, offering a shared platform to exchange experiences and alleviate emotional and physical burdens. The group will provide patients with access to essential resources such as medical equipment and nursing care, while creating a compassionate community dedicated to raising awareness about palliative care.
Broadcast messages, emails, and monthly communications will keep patients, and their families informed and connected, ensuring that those who may not yet understand the importance of palliative care receive the support they need.
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