Tips For Caregivers & Families Of People With Dementia

Caring for a family member with dementia is one of the most challenging experiences anyone can face, a journey that often begins with subtle signs and unspoken worries. Families often misunderstand the symptoms of dementia for mere aging or stress, until the reality of a devastating diagnosis set in. Dementia, including Alzheimer's Disease, is a complex neurological condition that affects millions of people worldwide, yet it remains misunderstood and stigmatised. For families, the emotional toll is immense, as loved ones slowly lose their memory, cognitive abilities, and independence.

In India, where over 5 million people (Source) currently live with dementia, the numbers are projected to surge, raising the urgent need for awareness, support, and resources. As caregivers often find themselves navigating this journey alone, the experience can feel overwhelming, both emotionally and physically. 

Here are some tips that will  help families to understand the challenges and learning to cope, and better support their loved ones through the painful progression of the disease.

Educate Yourself About Dementia

Understanding the nature of dementia and its progression can help you anticipate changes and manage symptoms more effectively. Knowledge about the disease can also reduce fear and stigma, making it easier to communicate with your loved one and others about their condition.

Create a Safe and Supportive Environment

Modify the home to ensure safety and comfort. Remove tripping hazards, install grab bars in the bathroom, and ensure good lighting. Familiar objects and a consistent environment can help reduce confusion and anxiety for the person with dementia.

Establish a Routine

People with dementia benefit from a structured routine. Consistent daily schedules for activities like bathing, dressing, and eating can help reduce confusion and provide a sense of stability.

Communicate with Patience and Clarity

Use simple, clear language and maintain eye contact. Be patient and give your loved one time to respond. Non-verbal cues like smiling and gentle touches can also be reassuring. Avoid arguing or trying to correct them, as this can lead to frustration.

Encourage Independence

Allow your loved one to do as much as they can on their own, even if it takes longer. This helps maintain their sense of independence and dignity. Offer assistance only when necessary and provide positive reinforcement for their efforts.

Engage in Meaningful Activities

Encourage activities that your loved one enjoys and can still participate in, such as listening to music, gardening, or simple crafts. These activities can provide a sense of accomplishment and joy, and help maintain cognitive function.

Plan for the Future

Discuss and document care preferences early on, including legal, financial, and medical decisions. Having a plan in place can reduce stress and ensure your loved one’s wishes are respected. Consider seeking advice from professionals such as elder care attorneys or financial planners.

Seek Professional Help When Needed

Don’t hesitate to seek help from healthcare professionals, such as doctors, nurses, or social workers, who can provide guidance and support. Professional caregivers or respite care services can also offer relief and ensure your loved one receives the best possible care.

Stay Connected and Seek Support

Join support groups for caregivers and families of people with dementia. Sharing experiences with others in similar situations can provide emotional support and practical advice. Staying connected with friends and family can also help reduce feelings of isolation and stress.

Dr Reema Nadig

Guest Author The author is Chief Operating Officer & Group Medical Director at KITES Senior Care